Pilcrow is an adventurous teenager at a time when villagers get to town in a horse-drawn cart. But it is a society edging into modernity and Pilcrow, like the rest of the villagers, is unknowingly on the cusp of change. Pilcrow, and other children can still wander the fields without fear, yet something lurks in the shadows that introduces fear into the world. And, as it turns out, it is a fear the modern world wants to forget at the expense of living. In addition to the unnamed fear, a stranger arrives in town. Actually, he is called the Stranger for most of the book. Put together, we have the creation of life’s greatest fear — fear of the unknown.
While not usually one for young adult books, I read John Green’s The Fault in our Stars along with my 14-year-old for a summer read. The book has been getting a lot of press (and it is now a movie), and having lost my 6-year-old to cancer 14 months ago, I’m a bit attuned to cancer-related books. However, there are so many bad books out there, I was worried this would trivialize a clearly non-trivial topic.
While everyone’s experience with cancer is different, Green gets it. Sure, I could argue details and teens with cancer will surely find issues to challenge, but this is believable. What struck me was how much he gets how cancer impacts a community, and especially a family. While the two teenagers, Hazel Grace and Augustus, are the ones dealing with life and death issues of cancer, we also see how their parents and friends handle it. Or don’t. Toward the end of the book we hear about all these people showing support on Facebook, but it is clear they have been absent from the daily lives of these teenagers and their families.
As a result, and because of newly shared interests, the cancer community creates its own world. For nearly three years our family was part of that community at a Children’s Hospital, and when we lost our son, we lost that community. The rest of the world, frankly, just does not get it. Green sees this alienation, sees how families respond, and respects that new world.
The title is great, as it a play on Shakespeare’s Julius Caesar where Cassius says to Brutus, “The fault, dear Brutus, is not in our stars, / But in ourselves, that we are underlings.” Green is saying is that the lives of Hazel Grace and Augustus have been created by outside forces. However, they take that “fault” and refuse to let the cancer rule their life. Their trip to Amsterdam is a slap in the face of the victim mentality they could assume.
Most telling is when Augustus identifies himself with his cancer. “What am I at war with? My cancer. And what is my cancer? My cancer is me. The tumors are made of me. They’re made of me as surely as my brain and my heart are made of me. It is a civil war, Hazel Grace, with a predetermined winner.” This reminded me of the time my oldest son was asking my youngest son with cancer, Oliver, about what kind of robot he would be if he could be a robot. As they talked about the traits, my oldest said, of course, that Oliver’s robot would not have cancer. “Yes it would,” said Oliver. “The cancer is part of who I am.” In other words, cancer patients begin to live with, and not against, this horrible disease.
The book also captures the experience of grief, and I don’t think of giving away too much to say that in a book about cancer, there is grief. Hazel Grace describes it as when you are in pain and they ask you to rate it from one to ten. She never said ten. “I called it a nine because I was saving my ten. And here it was, the great and terrible ten, slamming me again and again as I lay still and alone in my bed staring a the ceiling, the waves tossing me against the rocks then pulling me back out to sea so they could launch me again into the jagged face of the cliff leaving me floating faceup on the water, undrowned.”
That is harsh. That is true. And that is why this book is worth reading, whether or not cancer has entered your life. You get a real sense of what it is to live with cancer as a patient and a family. And the cancer community loses people all the time, so they get grief.
If any part of the book could be changed, it is a sexual encounter between two teens that could have been avoided. It adds nothing to a connection that is already there, and does not send the best message to teenagers (call me a prude, but there are other options in life).
As a parent who has lost a child, the book had me early on, when Hazel Grace (who narrates the book) says: “There is only one thing in this world shittier than biting it from cancer when you’re sixteen, and that’s having a kid who bites it from cancer.”
Not my words, but my feelings.